Kolbin A.S., Vlodavets D.V., Kurylev A.A., Germanenko O.Yu., Kolbina N.Yu. Health Technologies Assessment for Orphan Diseases. Example of Social and Economic Burden of Spinal Muscular Atrophy. Pediatric pharmacology. 2021;18(5):408-415. (In Russ.) https://doi.org/10.15690/pf.v18i5.2333
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