THEORETICAL AND EMPIRICAL SUBSTANTIATION OF PALLIATIVE CARE IN PEDIATRICS
https://doi.org/10.15690/pf.v10i2.651
Abstract
The aim of the study is to study theoretical and practical basics of organizing specialized palliative pediatric service while taking into consideration the need for rendering complex medical-social help to children at the terminal stage of a disease and their parents. Patients and study methods. The study was conducted using the methods of theoretical literature analysis, comparison, generalization, observation, interview and polls. 252 children with severe, life-threatening diseases, and 368 parents of such children took part at the empirical stage. Results. It was proved that palliative help should start as soon as the diagnosis (presupposing untimely death risk) is set and may continue throughout the disease, in the moment of death and after it. Palliative help may most efficiently be rendered at healthcare institutions as they have all the necessary conditions. Conclusions. The following were defined as the main areas of psychological help: pedagogical and psychological work with the child to create a maximally comfortable and emotionally developing environment; psychological work with relatives to preserve their health and personal potential and prevent family breakdown.
About the Authors
S. B. LazurenkoRussian Federation
N. V. Mazurova
Russian Federation
MD, senior research scientist of the Laboratory of Special Psycology and Correctional Education of SCCH
L. S. Namazova-Baranova
Russian Federation
A. K. Gevorkyan
Russian Federation
L. M. Kuzenkova
Russian Federation
N. D. Vashakmadze
Russian Federation
References
1. Palliativnaya pomoshch' [Palliative Care]. Available at: http://palliativ.ru/
2. Stoicheva M.G. Profil. zabol. i ukrepl. zdorov – Prophylaxis of diseases and health improvement. 2002; 6: 45–48.
3. Khetagurova A.K. Palliativnaya pomoshch': mediko-sotsial'nye, organizatsionnye i eticheskie printsipy [Palliative Care: Medical, Social, Organizational and Ethic Principles]. Moscow, GOU VUNMTs MZ RF, 2003. 138 p.
4. Marilyn J. Field and Richard E. Behrman, Editors When Children Die: Improving Palliative and End-of-Life Care for Children and Their Families. Washington, D. C., National Academies Press, 2003. 712 p.
5. Himelstein B. P. Palliative care for infants, children, adolescents, and their families. J Palliative Med. 2006; 9: 163–181.
6. Michelson K. N., Steinhorn D. M. Pediatric End-of-Life Issues and Palliative Care. Clin. Pediatr. Emerg. Med. 2007; 8 (3): 212–219.
7. Gnezdilov A.V. Problemy khospisnoi sluzhby v Rossii [Problems Hospice Service in Russia]. Materialy konferentsii «Vsem mirom protiv raka» (Proceedings of the Conference "All Together Against Cancer"). Moscow, Fond «Palliativnoi meditsiny i reabilitatsii bol'nykh», 2001. pp. 24–25.
8. Novikov G.A., Osipova N.A., Starinskii V.V. Voprosy onkologii – Problems of oncology. 1995; 2: 27–28.
9. Byalik M.A., Bukhny A.F., Volokh S.A., Tseitlin G.Ya. Voprosy gematologii, onkologii i immunopatologii v pediatrii – Questions hematology, oncology and immunopathology in pediatrics. 2004; 3 (3): 61–69.
10. Firsov M.V. Istoriya sotsial'noi raboty v Rossii: Uchebnoe posobie dlya studentov vysshikh uchebnykh zavedenii [History of Social Work in Russia: Manual for Student of Higher Educational Institutes]. Moscow, Vlados, 1999. 256 p.
11. Deklaratsiya o pravakh patsienta. Prinyata 34-i Vsemirnoi meditsinskoi assambleei. [Declaration of Lisbon on the Rights of the Patient. Adopted by the 34th World Medical Assembly]. Lisbon, Portugal, September/October 1981. Available at: http://lib.znaimo.com.ua/docs/5/index-15069.html
12. Palliativnaya meditsina i reabilitatsiya. Pod red. G.A. Novikova [Palliative Medicine and Rehabilitation. Edited by G.A. Novikov]. Moscow, Fond «Palliativnoi meditsiny i reabilitatsii bol'nykh», 2001. pp. 3–4.
13. Sepulveda C., Marlin A., Yoshida T., Ullrich A. Palliative Care: The World Health Organization’s Global Perspective. J. of Pain and Symptom Manag. 2002; 24: 91–96.
14. World Health Organization. National cancer control programmes: policies and managerial guidelines, 2nd ed. Geneva, Switzerland, World Health Organization, 2002. 180 p.
Review
For citations:
Lazurenko S.B., Mazurova N.V., Namazova-Baranova L.S., Gevorkyan A.K., Kuzenkova L.M., Vashakmadze N.D. THEORETICAL AND EMPIRICAL SUBSTANTIATION OF PALLIATIVE CARE IN PEDIATRICS. Pediatric pharmacology. 2013;10(2):101-106. https://doi.org/10.15690/pf.v10i2.651