Quality of Life Features Analysis in Children with Scleroderma: Narrative Review
https://doi.org/10.15690/pf.v23i1.3001
Abstract
This article presents the analysis of literature data on the quality of life (QoL) of children with chronic diseases and with scleroderma in particular. The findings suggest that both physical and emotional state of chronically ill children are impaired. It has been noted that the study of QoL in pediatrics reflects crucial area: comprehensive evaluation of treatment, rehabilitation, preventive measures, and health measures efficacy. QoL assessment feature was demonstrated indicating the need for additional conclusions for parents, doctors, and immediate circle. Description of QoL indicators for children with scleroderma (that allow to assess health state, therapy efficacy, and disease prognosis); QoL questionnaires; predictors of QoL decline are given.
Supporting agencies: Not specified
About the Authors
J. S. Bogomolova
Samara State Medical University
Russian Federation
Disclosure of interest:
Russian Federation
Julia S. Bogomolova – MD.
89, Chapaevskaya Str., Samara, 443099, телефон: +7 (996) 623-57-94
Disclosure of interest:
Not declared
G. V. Santalova
Samara State Medical University
Russian Federation
Disclosure of interest:
Russian Federation
Galina V. Santalova - MD, PhD, Professor.
Samara
Disclosure of interest:
Not declared
G. Yu. Poretskova
Samara State Medical University
Russian Federation
Disclosure of interest:
Russian Federation
Galina Yu. Poretskova - MD, PhD, Associate Professor.
Samara
Disclosure of interest:
Not declared
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Bogomolova J.S., Santalova G.V., Poretskova G.Yu. Quality of Life Features Analysis in Children with Scleroderma: Narrative Review. Pediatric pharmacology. 2026;23(1):19-26. (In Russ.) https://doi.org/10.15690/pf.v23i1.3001
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