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<article article-type="research-article" dtd-version="1.3" xmlns:mml="http://www.w3.org/1998/Math/MathML" xmlns:xlink="http://www.w3.org/1999/xlink" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance" xml:lang="ru"><front><journal-meta><journal-id journal-id-type="publisher-id">ppharm</journal-id><journal-title-group><journal-title xml:lang="ru">Педиатрическая фармакология</journal-title><trans-title-group xml:lang="en"><trans-title>Pediatric pharmacology</trans-title></trans-title-group></journal-title-group><issn pub-type="ppub">1727-5776</issn><issn pub-type="epub">2500-3089</issn><publisher><publisher-name>Издательство «ПедиатрЪ»</publisher-name></publisher></journal-meta><article-meta><article-id pub-id-type="doi">10.15690/pf.v9i1.170</article-id><article-id custom-type="elpub" pub-id-type="custom">ppharm-377</article-id><article-categories><subj-group subj-group-type="heading"><subject>Research Article</subject></subj-group><subj-group subj-group-type="section-heading" xml:lang="ru"><subject>МЕДИКО-ПСИХОЛОГО-ПЕДАГОГИЧЕСКАЯ ПОМОЩЬ ДЕТЯМ</subject></subj-group><subj-group subj-group-type="section-heading" xml:lang="en"><subject>MEDICAL AND PSYCHO-PEDAGOGICAL CARE FOR CHILDREN</subject></subj-group></article-categories><title-group><article-title>ОРГАНИЗАЦИЯ ПСИХОЛОГО-ПЕДАГОГИЧЕСКОЙ ПОМОЩИ В КОМПЛЕКСНОЙ ПРОГРАММЕ РЕАБИЛИТАЦИИ ДЕТЕЙ С ТЯЖЕЛЫМИ ХРОНИЧЕСКИМИ НАСЛЕДСТВЕННЫМИ БОЛЕЗНЯМИ ОБМЕНА ВЕЩЕСТВ (НА ПРИМЕРЕ МУКОПОЛИСАХАРИДОЗА)</article-title><trans-title-group xml:lang="en"><trans-title>ORGANIZATION OF PSYCHOLOGY AND PEDAGOGICAL CARE IN CHILDREN WITH SEVERE CHRONIC HEREDITARY METABOLIC DISEASES REHABILITATION (AT THE MODEL OF MUCOPOLYSACCHARIDOSIS)</trans-title></trans-title-group></title-group><contrib-group><contrib contrib-type="author" corresp="yes"><name-alternatives><name name-style="eastern" xml:lang="ru"><surname>Лазуренко</surname><given-names>С. Б.</given-names></name><name name-style="western" xml:lang="en"><surname>Lazurenko</surname><given-names>S. B.</given-names></name></name-alternatives><bio xml:lang="ru"><p>кандидат педагогических наук, доцент, заведующая лабораторией специальной психологии и коррекционногообучения НИИ профилактической педиатрии и восстановительного лечения НЦЗД РАМН</p></bio><email xlink:type="simple">neonatepearl@yandex.ru</email><xref ref-type="aff" rid="aff-1"/></contrib><contrib contrib-type="author" corresp="yes"><name-alternatives><name name-style="eastern" xml:lang="ru"><surname>Намазова-Баранова</surname><given-names>Л. С.</given-names></name><name name-style="western" xml:lang="en"><surname>Namazova-Baranova</surname><given-names>L. S.</given-names></name></name-alternatives><email xlink:type="simple">namazova@nczd.ru</email><xref ref-type="aff" rid="aff-1"/></contrib></contrib-group><aff-alternatives id="aff-1"><aff xml:lang="ru"><institution>Научный центр здоровья детей РАМН, Москва</institution><country>Россия</country></aff><aff xml:lang="en"><institution>Scientific Centre of Children’s Health RAMS, Moscow</institution><country>Russian Federation</country></aff></aff-alternatives><pub-date pub-type="collection"><year>2012</year></pub-date><pub-date pub-type="epub"><day>19</day><month>01</month><year>2012</year></pub-date><volume>9</volume><issue>1</issue><issue-title>Педиатрическая фармакология</issue-title><fpage>91</fpage><lpage>97</lpage><permissions><copyright-statement>Copyright &amp;#x00A9; Лазуренко С.Б., Намазова-Баранова Л.С., 2012</copyright-statement><copyright-year>2012</copyright-year><copyright-holder xml:lang="ru">Лазуренко С.Б., Намазова-Баранова Л.С.</copyright-holder><copyright-holder xml:lang="en">Lazurenko S.B., Namazova-Baranova L.S.</copyright-holder><license xml:lang="ru" license-type="creative-commons-attribution" xlink:href="https://creativecommons.org/licenses/by/4.0/" xlink:type="simple"><license-p>Данная работа распространяется под лицензией Creative Commons Attribution 4.0.</license-p></license><license xml:lang="en" license-type="creative-commons-attribution" xlink:href="https://creativecommons.org/licenses/by/4.0/" xlink:type="simple"><license-p>This work is licensed under a Creative Commons Attribution 4.0 License.</license-p></license></permissions><self-uri xlink:href="https://www.pedpharma.ru/jour/article/view/377">https://www.pedpharma.ru/jour/article/view/377</self-uri><abstract/><trans-abstract xml:lang="en"/><kwd-group xml:lang="ru"><kwd>дети с ограниченными возможностями здоровья</kwd><kwd>дети-инвалиды</kwd><kwd>специальная психолого-педагогическая помощь</kwd><kwd>медико-психолого-педагогическая реабилитация</kwd><kwd>состояние здоровья детей с наследственными болезнями обмена веществ</kwd><kwd>прогрессирующая деменция</kwd><kwd>обучение</kwd></kwd-group><kwd-group xml:lang="en"><kwd>children with limited abilities</kwd><kwd>disabled children</kwd><kwd>special psychological and pedagogical care</kwd><kwd>medical and psychological and pedagogical rehabilitation</kwd><kwd>children with hereditary metabolic diseases health</kwd><kwd>progressive dementia</kwd><kwd>education of children with</kwd></kwd-group></article-meta></front><back><ref-list><title>References</title><ref id="cit1"><label>1</label><citation-alternatives><mixed-citation xml:lang="ru">Баранов А. А., Альбицкий В. Ю., Зелинская Д. И. Инвалидность детского населения России. М.: Центр развития межсекторальных программ, 2008. 208 с.</mixed-citation><mixed-citation xml:lang="en">Baranov A.A., Albitskiy V.Y., Zelinskaya D.I. Disability of the child population in Russia. -Moscow: Center for Development of cross-sector programs, 2008. – p.208</mixed-citation></citation-alternatives></ref><ref id="cit2"><label>2</label><citation-alternatives><mixed-citation xml:lang="ru">Краснопольская К. Д. Наследственные болезни обмена веществ. М.: Медицина, 2005. 364 с.</mixed-citation><mixed-citation xml:lang="en">Krasnopolskaya K.D. Inherited metabolic diseases. - Moscow: Medicine, 2005. – p.364</mixed-citation></citation-alternatives></ref><ref id="cit3"><label>3</label><citation-alternatives><mixed-citation xml:lang="ru">Бадалян Л. О. Лекции по клинической генетике. М.: Медицина, 1974. 208 с.</mixed-citation><mixed-citation xml:lang="en">Badalyan L.O. Lectures on clinical genetics. - Moscow: Medicine, 1974. – p.208</mixed-citation></citation-alternatives></ref><ref id="cit4"><label>4</label><citation-alternatives><mixed-citation xml:lang="ru">Международная номенклатура нарушений, ограничений жизнедеятельности и социальной недостаточности: Руководство по классификации последствий болезни и причин инвалидности. М.: Медицина, 1995. 16 с.</mixed-citation><mixed-citation xml:lang="en">International Nomenclature of violations, Disability and Handicaps: A Guide to the classification of the effects of illness and causes of disability. - Moscow: Medicine, 1995. - 16.</mixed-citation></citation-alternatives></ref><ref id="cit5"><label>5</label><citation-alternatives><mixed-citation xml:lang="ru">Beck A. T. The diagnosis and management of depression. University of Pennsylvania Press, 1967. 147 p.</mixed-citation><mixed-citation xml:lang="en">Beck A.T. The diagnosis and management of depression. University of Pennsylvania Press, 1967. –p.147</mixed-citation></citation-alternatives></ref><ref id="cit6"><label>6</label><citation-alternatives><mixed-citation xml:lang="ru">Малофеев Н. Н. От выявления дефекта к индивидуальному плану развития ребенка / Психолого-педагогическое и медико-социальное сопровождение развития ребенка: Материалы рос.-фламанд. науч.-практ. конф. Ч. 1. СПб., 2001. С. 19–25.</mixed-citation><mixed-citation xml:lang="en">Malofeev N.N. From the identification of the defect to an individual plan for the development of the child / Psychological-pedagogical and medico-social support for child development: materials-Flamand. Scientific-Practical. Conference. Part 1. - St., 2001. -S. 19-25.</mixed-citation></citation-alternatives></ref><ref id="cit7"><label>7</label><citation-alternatives><mixed-citation xml:lang="ru">Малофеев Н. Н. Реабилитация средствами образования должна начинаться с первых месяцев жизни ребенка. URL: http://www.ise.iip.net</mixed-citation><mixed-citation xml:lang="en">Malofeev N.N. Rehabilitation through education must begin with the first months of life. URL: http://www.ise.iip.net</mixed-citation></citation-alternatives></ref><ref id="cit8"><label>8</label><citation-alternatives><mixed-citation xml:lang="ru">Beck A. T., Freeman A., Davis D. D. Cognitive therapy of personality disorders. The Guilford Press, 2003. 412 p.</mixed-citation><mixed-citation xml:lang="en">Beck A.T., Freeman A., Davis D.D. Cognitive therapy of personality disorders. - The Guilford Press, 2003. – p.412</mixed-citation></citation-alternatives></ref><ref id="cit9"><label>9</label><citation-alternatives><mixed-citation xml:lang="ru">Специальная дошкольная педагогика: учеб. пособие / под ред. Е. А. Стребелевой. М.: Издат. центр «Академия», 2001. 312 с.</mixed-citation><mixed-citation xml:lang="en">A special pre-school pedagogy: studies. Guide / ed. E.A. Strebeleva. - M.: Izdat. Center of the "Academy" in 2001. – p.312</mixed-citation></citation-alternatives></ref><ref id="cit10"><label>10</label><citation-alternatives><mixed-citation xml:lang="ru">Cohen-Mansfield J., Golander H., Arnheim G. Self-identity in older persons suffering from dementia: Preliminary results. Social Science Medicine. 2000; 51: 381–394.</mixed-citation><mixed-citation xml:lang="en">Cohen-Mansfield J., Golander H., Arnheim G. Self-identity in older persons suffering from dementia: Preliminary results / / Social Science Medicine. - 2000, 51: 381-394.</mixed-citation></citation-alternatives></ref><ref id="cit11"><label>11</label><citation-alternatives><mixed-citation xml:lang="ru">Выготский Л. С. Собрание сочинений: в 6 т. Т. 2, 5. М.: Педагогика, 1983.</mixed-citation><mixed-citation xml:lang="en">Vygotsky L.S. Collected Works: in 6 vols 2 and 5. - M.: Education, 1983.</mixed-citation></citation-alternatives></ref><ref id="cit12"><label>12</label><citation-alternatives><mixed-citation xml:lang="ru">Анохин П. К. Очерки по физиологии функциональных систем. М.: Медицина, 1975. 448 с.</mixed-citation><mixed-citation xml:lang="en">Anokhin P.K. Essays on the physiology of functional systems. - Moscow: Medicine, 1975. –p.448</mixed-citation></citation-alternatives></ref><ref id="cit13"><label>13</label><citation-alternatives><mixed-citation xml:lang="ru">Психолого-педагогическая диагностика детей раннего и дошкольного возраста / под ред. Е. А. Стребелевой. М.: Просвещение, 2003. — 164 с.</mixed-citation><mixed-citation xml:lang="en">Psychological and pedagogical diagnosis of infants and preschool children / edited. E.A. Strebeleva. -M.: Education, 2003. – p.164</mixed-citation></citation-alternatives></ref><ref id="cit14"><label>14</label><citation-alternatives><mixed-citation xml:lang="ru">Пантюхина Г. В., Печора К. Л., Фрухт Э. Л. Диагностика нервно-психического развития детей первых трех лет жизни. М.: ЦОЛИУВ, 1979. С. 3–53.</mixed-citation><mixed-citation xml:lang="en">Pantyukhina G.V., Pechora K.L., EL Frucht E. L. Diagnosis of nervous and mental development of children during the first three years of life. - M.: TSOLIUV, 1979. - S. 3-53.</mixed-citation></citation-alternatives></ref></ref-list><fn-group><fn fn-type="conflict"><p>The authors declare that there are no conflicts of interest present.</p></fn></fn-group></back></article>
