<?xml version="1.0" encoding="UTF-8"?>
<!DOCTYPE article PUBLIC "-//NLM//DTD JATS (Z39.96) Journal Publishing DTD v1.3 20210610//EN" "JATS-journalpublishing1-3.dtd">
<article article-type="editorial" dtd-version="1.3" xmlns:mml="http://www.w3.org/1998/Math/MathML" xmlns:xlink="http://www.w3.org/1999/xlink" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance" xml:lang="ru"><front><journal-meta><journal-id journal-id-type="publisher-id">ppharm</journal-id><journal-title-group><journal-title xml:lang="ru">Педиатрическая фармакология</journal-title><trans-title-group xml:lang="en"><trans-title>Pediatric pharmacology</trans-title></trans-title-group></journal-title-group><issn pub-type="ppub">1727-5776</issn><issn pub-type="epub">2500-3089</issn><publisher><publisher-name>Издательство «ПедиатрЪ»</publisher-name></publisher></journal-meta><article-meta><article-id pub-id-type="doi">10.15690/pf.v18i4.2247</article-id><article-id custom-type="elpub" pub-id-type="custom">ppharm-2053</article-id><article-categories><subj-group subj-group-type="heading"><subject>Research Article</subject></subj-group><subj-group subj-group-type="section-heading" xml:lang="ru"><subject>КРАТКИЕ СООБЩЕНИЯ</subject></subj-group><subj-group subj-group-type="section-heading" xml:lang="en"><subject>SHORT REPORT</subject></subj-group></article-categories><title-group><article-title>Резолюция по итогам Экспертного совета «Современные возможности выбора ферментной заместительной терапии синдрома Хантера»</article-title><trans-title-group xml:lang="en"><trans-title>Resolution on the results of the Expert council «Modern options of enzyme replacement therapy in Hunter syndrome management»</trans-title></trans-title-group></title-group><contrib-group><contrib contrib-type="author" corresp="yes"><name-alternatives><name name-style="eastern" xml:lang="ru"><surname>Редакционная</surname><given-names>статья</given-names></name><name name-style="western" xml:lang="en"><surname>Editorial</surname><given-names>Article</given-names></name></name-alternatives></contrib></contrib-group><pub-date pub-type="collection"><year>2021</year></pub-date><pub-date pub-type="epub"><day>17</day><month>10</month><year>2021</year></pub-date><volume>18</volume><issue>4</issue><fpage>324</fpage><lpage>326</lpage><permissions><copyright-statement>Copyright &amp;#x00A9; Редакционная с., 2021</copyright-statement><copyright-year>2021</copyright-year><copyright-holder xml:lang="ru">Редакционная с.</copyright-holder><copyright-holder xml:lang="en">Editorial a.</copyright-holder><license license-type="creative-commons-attribution" xlink:href="https://creativecommons.org/licenses/by/4.0/" xlink:type="simple"><license-p>This work is licensed under a Creative Commons Attribution 4.0 License.</license-p></license></permissions><self-uri xlink:href="https://www.pedpharma.ru/jour/article/view/2053">https://www.pedpharma.ru/jour/article/view/2053</self-uri><abstract><p>9 июня 2021 г. в Москве при поддержке компании «Такеда» состоялся совет экспертов на тему «Современные возможности выбора ферментной заместительной терапии синдрома Хантера».</p></abstract><trans-abstract xml:lang="en"><p>.</p></trans-abstract></article-meta></front><back><ref-list><title>References</title><ref id="cit1"><label>1</label><citation-alternatives><mixed-citation xml:lang="ru">Neufeld Е, Muenzer J. The mucopolysaccharidosis. In: The Metabolic and Molecular Basis of Inherited Disease. Scriver CR, Beaudet AL, Sly WS, eds. 8th ed. New York, NY: McGraw-Hill; 2001. pp. 3421-3452.</mixed-citation><mixed-citation xml:lang="en">Neufeld Е, Muenzer J. The mucopolysaccharidosis. In: The Metabolic and Molecular Basis of Inherited Disease. Scriver CR, Beaudet AL, Sly WS, eds. 8th ed. New York, NY: McGraw-Hill; 2001. pp. 3421-3452.</mixed-citation></citation-alternatives></ref><ref id="cit2"><label>2</label><citation-alternatives><mixed-citation xml:lang="ru">Scarpa М, Almassy Z, Beck М, et al. Mucopolysaccharidosis type II: European recommendations for the diagnosis and multidisciplinary management of а rare disease. Orphanet J Rare Dis. 2011;6:72-77. doi: 10.1186/1750-1172-6-72</mixed-citation><mixed-citation xml:lang="en">Scarpa М, Almassy Z, Beck М, et al. Mucopolysaccharidosis type II: European recommendations for the diagnosis and multidisciplinary management of а rare disease. Orphanet J Rare Dis. 2011;6:72-77. doi: 10.1186/1750-1172-6-72</mixed-citation></citation-alternatives></ref><ref id="cit3"><label>3</label><citation-alternatives><mixed-citation xml:lang="ru">Muenzer J, Jones SA, Tylki-Szymanska А, et al. Ten years of the Hunter Outcome Survey (HOS): insights, achievements, and lessons learned from а global patient registry. Orphanet J Rare Dis. 2017;12(1):82. doi: 10.1186/s13023-017-0635-z</mixed-citation><mixed-citation xml:lang="en">Muenzer J, Jones SA, Tylki-Szymanska А, et al. Ten years of the Hunter Outcome Survey (HOS): insights, achievements, and lessons learned from а global patient registry. Orphanet J Rare Dis. 2017;12(1):82. doi: 10.1186/s13023-017-0635-z</mixed-citation></citation-alternatives></ref><ref id="cit4"><label>4</label><citation-alternatives><mixed-citation xml:lang="ru">Meikle PJ, Hopwood JJ, Clague АЕ, Carey WF. Prevalence of lysosomal storage disorders. JAMA. 1999;281(3):249-254. doi: 10.1001/jama.281.3.249</mixed-citation><mixed-citation xml:lang="en">Meikle PJ, Hopwood JJ, Clague АЕ, Carey WF. Prevalence of lysosomal storage disorders. JAMA. 1999;281(3):249-254. doi: 10.1001/jama.281.3.249</mixed-citation></citation-alternatives></ref><ref id="cit5"><label>5</label><citation-alternatives><mixed-citation xml:lang="ru">Wraith JE, Scarpa М, Beck М, et al. Mucopolysaccharidosis type II (Hunter syndrome): а clinical review and recommendations for treatment in the era of enzyme replacement therapy. Eur J Pediatr. 2008;167(3):267-277. doi: 10.1007/s00431-007-0635-4</mixed-citation><mixed-citation xml:lang="en">Wraith JE, Scarpa М, Beck М, et al. Mucopolysaccharidosis type II (Hunter syndrome): а clinical review and recommendations for treatment in the era of enzyme replacement therapy. Eur J Pediatr. 2008;167(3):267-277. doi: 10.1007/s00431-007-0635-4</mixed-citation></citation-alternatives></ref><ref id="cit6"><label>6</label><citation-alternatives><mixed-citation xml:lang="ru">Sampayo-Cordero М, Miguel-Huguet В, Pardo-Mateos А. Agreement between results of meta-analyses from case reports and clinical studies, regarding efficacy and safety of idursulfase therapy in patients with mucopolysaccharidosis type II (MPS-II). А new tool for evidence-based medicine in rare diseases. Orphanet J Rare Dis. 2019;14(1):230. doi: 10.1186/s13023-019-1202-6</mixed-citation><mixed-citation xml:lang="en">Sampayo-Cordero М, Miguel-Huguet В, Pardo-Mateos А. Agreement between results of meta-analyses from case reports and clinical studies, regarding efficacy and safety of idursulfase therapy in patients with mucopolysaccharidosis type II (MPS-II). А new tool for evidence-based medicine in rare diseases. Orphanet J Rare Dis. 2019;14(1):230. doi: 10.1186/s13023-019-1202-6</mixed-citation></citation-alternatives></ref><ref id="cit7"><label>7</label><citation-alternatives><mixed-citation xml:lang="ru">Bradley L, Haddow Н, Palomaki G. Treatment of mucopolysaccharidosis type II (Hunter syndrome): results from а systematic evidence review. Genet Med. 2017;19(11):1187-1201. doi: 10.1038/gim.2017.30</mixed-citation><mixed-citation xml:lang="en">Bradley L, Haddow Н, Palomaki G. Treatment of mucopolysaccharidosis type II (Hunter syndrome): results from а systematic evidence review. Genet Med. 2017;19(11):1187-1201. doi: 10.1038/gim.2017.30</mixed-citation></citation-alternatives></ref><ref id="cit8"><label>8</label><citation-alternatives><mixed-citation xml:lang="ru">Guffon N, Heron В, Chabrol В. Diagnosis, quality of life, and treatment of patients with Hunter syndrome in the French healthcare system: а retrospective observational study. Orphanet J Rare Dis. 2015;10:43. doi: 10.1186/s13023-015-0259-0</mixed-citation><mixed-citation xml:lang="en">Guffon N, Heron В, Chabrol В. Diagnosis, quality of life, and treatment of patients with Hunter syndrome in the French healthcare system: а retrospective observational study. Orphanet J Rare Dis. 2015;10:43. doi: 10.1186/s13023-015-0259-0</mixed-citation></citation-alternatives></ref><ref id="cit9"><label>9</label><citation-alternatives><mixed-citation xml:lang="ru">Giugliani R, Federhen А, Rojas MV, et al. Mucopolysaccharidosis I, II, and VI: Brief review and guidelines for treatment. Genet Mol Biol. 2010;33(4):589-604. doi: 10.1590/S1415-47572010005000093</mixed-citation><mixed-citation xml:lang="en">Giugliani R, Federhen А, Rojas MV, et al. Mucopolysaccharidosis I, II, and VI: Brief review and guidelines for treatment. Genet Mol Biol. 2010;33(4):589-604. doi: 10.1590/S1415-47572010005000093</mixed-citation></citation-alternatives></ref></ref-list><fn-group><fn fn-type="conflict"><p>The authors declare that there are no conflicts of interest present.</p></fn></fn-group></back></article>
